We first realized that my daughter had
Cold Urticaria when she was eight years old following a severe
reaction. We attended many doctor's appointments, subjected her to many
tests and a surgery that was intended to help but did not. TLC dealt
with
many reactions that caused much pain, burning and itching. Some
doctors laughed at us when told that she was diagnosed with an
allergy to cold. Teachers were impossible to deal with. It was
difficult on TLC with the development of relationships with her
friends. She could not go out to places they did or do some of the
things that they did.
One night while scared of a storm, TLC
crawled in bed with me. We talked a while and sat quietly for what
seemed forever. Then the question that pierced my heart, the one I
will never forget, she asked, “mommy, if moms know everything, why
don't you know how to fix me?” I was broken hearted, because I
tried my best to get answers, a diagnosis, a cure. I was broken
hearted, because I felt as though I had let my ten year old down.
After a few moments of tears and silence, all I could tell her was,
“you know, I used to think that doctors knew everything too.”
Her innocence was gone, so was mine.
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