One of the first identifiers that a reaction is about to begin is that her face loses most of its red or pink coloring. The bottom eye lids turn a purple color.
Red flares begin to show on her ears, face, and joints; elbows, knuckles on her hands, knees and ankles. Starting on the joints only are not typical for all sufferers of Cold Urticaria.
Here is how they appear on the elbows when they first begin to swell just prior to becoming wheals.
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People with this condition do not have to be cold to breakout. This welt was caused by direct exposure to cold air.
Warm sunny days with a light breeze can cause a reaction on exposed skin.
Skin not directly exposed to cold can also have a reaction.
With a large enough reaction, it can look as though the person was bit by many mosquitos or fire ants. It feels the same way too. Reactions on the surface of the skin starts with a burning sensation and then added to that is intense itching.
Eventually, when exposed long enough, swelling occurs in the affected area.
Though my daughter's reaction typically begin on the joints, the reactions spread to all areas in between. Every area of the body is affected.
The appearance of the reactions can change in appearance depending on the type of medication taken to prevent them. As you can see in this picture, some people may have an associated discoloration (blue tint) to the skin during a reaction. Some can be much more severe than this.
This reaction originally looked just like the pictures of the arms above, completely covered. After dipping in a warm bath, this is what the reaction looks like as it goes away.
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This is angioedema. The difference is that the reaction is deeper in the tissue (where there are no nerve endings). These reactions do not itch or burn and they don't go away for more than 24 hours.
Again, you can see the blue tint in the skin. In this case, it is known as Acrocyanosis.
These reactions are flat, they don't wheal up. In my daughter's case, they usually had a white halo around them.
After the reaction goes away, a scarring effect occurs. These are like water stains left on a table after a glass is removed. These usually remain for a couple days until full healing has occurred.
Wow. These are the best photos of what us sufferers go through. I'm sorry that your daughter's threshold is what it is - mine is the same.
ReplyDeleteThank you for sharing.
I have Familial cold auto inflammatory syndrome, which they have several names for this Genetic disease. The best little remedie I have that I use daily,is covering my whole body with coconut oil which helps with breakouts and swelling.
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