Introduction

It seems that everyone has a blog these days.  I hate being just one more, but I have a story and I want to share.  Not only will it give me an outlet, but a voice.  Hopefully it will give you knowledge, understanding and compassion in the area rare of diseases and a family's journey.

Our daughter, now a teenager, has been diagnosed with three rare disorders; Cold Induced Urticaria, Dysautonomia and Ehlers Danlos Syndrome.  Among these disorders are many regular diagnoses such as migraines, neuropathy, hives, hypoglycemia, and many others.

I will share the milestones of our journey, the stumbles, the successes, the acceptance.  I will also share information about the conditions themselves.  I hope to bring awareness for others like her, acceptance and awareness among peers and physicians.

This is our journey as we are in rare company, looking beyond the mirror.