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Our Journey
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Friday, February 7, 2014
Ehlers Danlos Our New Best Friend
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March marks almost two years since my daughter first started doing well with her Dysautonomia treatments. She improved even more since this...
What a Big Jerk!
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Back when I was in the 8th Grade, we were treated to a camp day. It was nearing the end of the year and symbolized the transition between m...
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Wednesday, November 20, 2013
So you think your child may have Dysautonomia?
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Though I am not promoting self diagnosis of your child, I do support empowering parents with knowledge and knowing how to move forward when ...
Thursday, October 31, 2013
My Favorite Websites / Blogs
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Websites: Cold Urticaria www.coldallergy.org http://www.jaoa.org/content/101/5_suppl/1S.full.pdf Facebook: Kidz 4 CU Cold Urtica...
Wednesday, October 30, 2013
Walking the Walk Part II
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With much anxiety, we returned to our journey of seeing doctors attempting to get answers. To our amazement, the first leg of our journey we...
Wednesday, September 11, 2013
Medicating for Cold Urticaria
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No one medicine that you or a child can take on a daily basis will prevent you from breaking out to cold once you have CU. As a matter of f...
Tuesday, September 3, 2013
First Step in Walking the Walk
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>> Previous Post >>TLC is now able to visit a clinic just over a hundred miles away that is specific to Dysautonomia. As we do...
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