Beyond the Mirror

We are at the Today Show raising awareness for all of my daughter's health conditions: Ehlers Danlos (a connetive Tissue disorder), Dys...

Please allow me to encourage you the best way I can.  First, find time to take care of yourself when ever you can even if it is for just a ...

Do you remember when you were a kid, laying in bed at night, wide awake, in the dark, allowing your imagination to get the best of you, the ...

Back when I was in the 8th Grade, we were treated to a camp day.  It was nearing the end of the year and symbolized the transition between m...

Though I am not promoting self diagnosis of your child, I do support empowering parents with knowledge and knowing how to move forward when ...

>> Previous Post >>TLC is now able to visit a clinic just over a hundred miles away that is specific to Dysautonomia.  As we do...

This journey is not ours alone.  It is shared. A couple years ago, we met a beautiful young lady.  She was at the State Fair in a booth sh...

We are starting our journey of visiting doctors once again, walking the walk.  When every we take this path along our journey, it feels like...

We have had so much going on in the last few days.  We just wanted to share with you another step along our journey of dealing with Dysauton...

Then your light will break forth like the dawn, and your healing will quickly appear; your right...

Oh what sadness to the hear the words of a dear friend who asked me, "What sin did you commit for God to punish your family and daught...

Helping others understand your symptoms with a rare / invisible condition is difficult.  People know what they know.  They understand enough...

Our daughter developed a condition that took a long time to put a name to.  We found the name, but like a puzzle piece, we had more puzzle p...

One thing that I share with people around me is that not just my daughter suffers from this condition, but our family does too. My daught...

We first realized that my daughter had Cold Urticaria when she was eight years old following a severe reaction. We attended many doctor...

Having a chronic condition presents many challenges. From the onset of symptoms, to the sometimes elusive diagnosis to the management and c...